Tuesday, January 24, 2012

The bitch came back..

The bitch came back the very next day
Oh, the bitch came back, I thought she was a goner
But, the bitch came back, she couldn't stay away
Don't you know the bitch came back?
                                                                   THEORY OF A DEADMAN LYRICS


Where should I start? Going with the timeline thing. So, I had my 2nd Gamma Knife experience November 2011. It was so much better than the first one. From the more limited time I had that torture device on my head to no infections on the back of my head and no steroids (!!!). Those Bee stings were as bad though. - That was not too bad, why did it take me so long to write it? Brains, I tell ya.. The nurses were as awesome as the first time but I had a change in Radiation Oncologist. I like my new one, it's a chick!!! But I do miss Vito.

Than there was X-mas and Silvester. Yes, you named a cat after the German word for New Years Eve :) Beth came over and we had a good party. Xbox Kinex, Wii and SoCo Ginger Ale. Some ice cream and Mint Baileys were involved as well. No idea what else we ate, stuff.. And we missed the countdown. Too much tension in the ski jump competition which, by the way, I won.

Yesterday I got some crappy news from my MRI results. It was a donuts and ice cream day.. Four tumors grew again. Bummer. The MRI was on Friday and I went to get the report from the medical records office Monday. How is that for proactive?!

I had an appointment with my Neurosurgeon anyways, that's the guy who screwed screws in my head twice, 4 screws each. So we asked him about my scan. What else should I talk to him about, the holes in the back of my head are nicely healed. Hmm, not too much, not his expertise. Why did he want to see me again?? So Reed and I decided to hijacked my Oncologist afterwards as he is in the same building. Another win for 'proactive patient involvement'. Much better. Going to have a bone and a CT scan to schedule. Along with my MUGA scan. Reed will have to do the scheduling as I am not allowed to drive, again. Something with my speech and weird stuff going on in my arm. My Onco and the Radiation Onco still have to compare old and new MRIs to see if the four tumors are new or treated ones that just won't die.. Depending on the history of those buggers it's another gamma knife and/or change in chemo. If I get off Tykerb those pesky goopey fingers and toes might go away. One can hope, right? Then we were off to Krispy Kreme and some Starbucks Mocha ice cream with dark chocolate pieces.



Let's see what the next news will be..


Oh ja, could you please comment on the blog directly? Than I can keep them with it and watch them over and over again. What can I say, it makes me happy :) If you want you can just copy and paste it to FB as well.

3 comments:

  1. Kick those stupid tumors right in the teeth!!! And good choice on the donuts and ice cream, by the way - I think I'm going to have to go get me some treats now, too.

    You're in our thoughts always. Keep up the good fight! Lots of love :)

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  2. Liebe Alex, ich denke sooo sehr an dich und hoffe jedes Mal auf einem besseren Blog Eintrag!!! Du bist eine starke Frau und Kaempfernatur, sieh dir an, wie du deine Kontrahenten beim Skispringen geschlagen hast :-)Diese Tumore haben echt noch nicht kapiert, dass der Kampf fuer sie nicht zu gewinnen ist. Ich druecke dich ganz ... ganz dolle. Alles Liebe Doreen.

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  3. Hi Alex, oh man you have to go through so much-crazy. Why isn't that stupid cancer dying off....damit!
    I must say also-I love reading your stories, you are an amazing writer!! You should write a book!!! Ivette

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